The Ohio Department of Health (ODH) provides metabolic formula to individuals born with metabolic disorders on the Ohio Newborn Screening Panel. Examples of these disorders include phenylketonuria (PKU), maple syrup urine disease, tyrosinemia, and propionic acidemia. A full list of eligible disorders can be found in the Eligibility link. Without these special formulas, individuals, especially infants and young children, may develop poor health outcomes and developmental delays. Every years in Ohio, 12-15 babies are born with PKU and approximately 10 babies born with the other metabolic disorders that require formula treatment. It is recommended that individuals with these diseases remain on formula for their lifetime.
Babies born with these disorders are identified through Ohio’s Newborn Screening Program, which tests a sample of newborns’ blood for these and other disorders. The families of babies with abnormal screening results are contacted to receive a confirmatory test. Those babies with confirmed disorders are referred to physicians and dietitians specializing in metabolic disorders and housed in children’s hospitals around the state.
ODH orders the specialized formula, which is shipped directly to the patients' homes. Formula is provided at no cost to the patient. Funds to support the program come from a portion of the newborn screening fee, the Children with Medical Handicaps program and the Women, Infants and Children (WIC) program. ODH provides formula to approximately 300 individuals in Ohio, at a cost of approximately $700,000 per year.
Requirements for participation in the program are listed in the Eligibility link, but include Ohio residency, application to third-party payment sources and being under the care of an approved Ohio metabolic center.
For more information about the program contact:
Ohio Department of Health
Metabolic Formula Program
246 North High Street
Columbus, OH 43215
Telephone: (614) 466-0227
Fax: (614) 564-2497
Last Updated: 05/20/2015