State Agencies | Online Services
 

Links

This page contains links to many genetics related programs, organizations and resources available within the state of Ohio and beyond. 


Links to Other Ohio Department of Health Related Programs that Collaborate with Genetics

  • Bureau for Children with Medical Handicaps: BCMH links families of children with special health care needs to a network of quality providers and helps families obtain payment for the services their children need.
         
  • Cancer Programs: Together with a variety of partners inside and outside ODH, the comprehensive cancer program works to reduce the burden of cancer across programs

  • Child & Family Health Services: coordinates an organized community effort to eliminate health disparities, improve birth outcomes and improve the health status of women, infants and children in Ohio.
     
  • Early Hearing Detection and Intervention: Coordinates the Newborn Hearing Screening and Regional Infant Hearing Programs in Ohio

  • Heart Disease and Stroke Prevention:  Supports CVD risk reduction activities through a variety of initiatives designed to reduce death and disability from heart disease and stroke.

  • Help Me Grow:  Part of Ohio’s prenatal to age three system of supports, the services offered by Help Me Grow equip parents with the means to help their child acquire the early building blocks necessary for long term success.

  • Newborn Metabolic Screening Program: Identifies newborn babies who may be at risk for select genetic, endocrine and metabolic disorders

  • Reproductive Health and Wellness: comprehensively addresses issues of reproductive health and wellness (including family planning) with a focus on populations in greatest need and identified priorities.  

  • School Nursing Program: supports the provision of quality health services in schools to promote student health and success.



National and Regional Genetics Related Program Links

  • Genetic Services Branch of the U.S. Department of Health and Human Services, Health Services and Resources Administration, Maternal and Child Health Bureau;  Plans, develops, monitors, implements, and evaluates programs for genetic services. The programs assist Regions, States and communities to develop and strengthen health care and public health infrastructure for genetic services through promoting a close partnership among consumers of those services and public health programs, organizations, health care professionals, the scientific genetics community and the general public.

  • Region 4 Genetics Collaborative: a collaborative network of families, genetic service providers, newborn screening laboratories, and leaders in public health genetics from Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio and Wisconsin.    

 

Family Health History Tools and Related Links



Tools/Resources Online



Family Support and Advocacy Related Links
  

  • Family Voices of Ohio:  works to assure high quality comprehensive, affordable, community based, culturally competent, family centered health care to all children, but especially those with special needs.   

  • Genetic Alliance:  a nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities
     
  • Receving Diagnosis:  The Journey from Cope to Hope

Genetics Disease Related Links

  • Disease InfoSearch:  Powered by the Genetic Alliance, this site provides quality information from a database of thousands of conditions and thousands of support groups and foundations.

  • Genetics Home Reference: Your Guide to Understanding Genetic Conditions: provides consumer-friendly information about the effects of genetic variations on human health.

  • GeneReviews:  provides expert-authored, peer-reviewed disease descriptions presented in a standardized format and focused on clinically relevant and medically actionable information on the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.

  • National Organization for Rare Disorders:  a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them.


Preconception Health/ Birth Defects Prevention Related Links

  • Genes In Life: developed by the Genetic Alliance as a place to learn about all the ways genetics is a part of everyone’s life. This site provides information about how genetics affects personal  health, how to talk with healthcare providers about genetics, how to get involved in genetics research, and much more.

  • March of Dimes, Ohio Chapter:  helping moms to have full-term pregnancies and research the problems that threaten the health of babies.

  • Mother ToBaby (Organization of Teratology Information Specialists): dedicated to providing evidence-based information to mothers, health care professionals, and the general public about medications and other exposures during pregnancy and while breastfeeding.

  • National Birth Defects Prevention Network:  a volunteer-based organization that addresses the issues of birth defects surveillance, research and prevention under one umbrella by maintaining a national network of state and population-based birth defects programs.

  • National Center for Birth Defects and Developmental Disabilities:  a Center for Disease Control and Prevention program

  • National Council on Folic Acid: promotes the benefits and consumption of folic acie

  • Not a Single Drop: Ohio’s web site about Fetal Alcohol Spectrum Disorder                   



Public Health Genomics Related Links

  • Centers for Disease Control and Prevention: Public Health Genomics:  a CDC Office that identifies, evaluates, and implements evidence-based genomics practices to prevent and control the country’s leading chronic, infectious, environmental, and occupational diseases.

      

Newborn Screening Related Links

  • Baby’s First Test:  provides answers to some of the common questions that come up about newborn screening.

      
Last Updated
: 10/15/14