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Understanding Your Baby's Newborn Screening Tests

A brochure outlining the newborn screening process and summarizing the disorders mandated for screening by the state of Ohio.  Parents are given the brochure prior to the collection of the newborn screen.  Translations are available in the following languages.

Information is in .PDF format. The free Adobe Acrobat Viewer is required to view them.

To order printed copies of the brochure and the Krabbe Leukodystrophy brochure insert in English, please print and fill out the Brochure Order Form and fax the form to the Ohio Department of Health Laboratories (614-644-4648).

This project is/was supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UG9MC30369 to the Association of Public Health Laboratories (APHL) for Pompe disease, MPS 1, and/or XALD newborn screening implementation programs which provided $2,000,000 during the fiscal year (if nongovernmental sources were used in support of the project, state the percentage financed with nongovernmental sources). This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS, the U.S. Government or APHL.”

Newborn Screening Follow-up Service Teams

  • Cystic Fibrosis Service Teams 

    The Ohio Department of Health Laboratory's list of Cystic Fibrosis Centers in Ohio for referral of infants identified on the Newborn Screen at elevated-risk for Cystic Fibrosis.

  • Pediatric Endocrinologists

    The Ohio Department of Health Laboratory's list of pediatric endocrinologists for referral of infants identified on the Newborn Screen at elevated-risk for endocrine disorders.

  • Genetic and Metabolic Service Teams

    The Ohio Department of Health Laboratory's list of physicians who specialize in metabolic disorders for referral of infants identified on the Newborn Screen at elevated-risk for metabolic disorders.

  • Sickle Cell Projects

    The Ohio Department of Health (ODH) program works in partnership with funded projects around the state to provide culturally sensitive, multi-disciplinary counseling, education, and treatment services to children and adults with hemoglobinopathies.

  • Severe Combined Immuno Deficiency Centers

    The Ohio Department of Health Laboratory list of pediatric immunologists for referral of infants identified on the Newborn Screen at elevated-risk for Severe Combined Immuno Deficiency disorders.

Emergency Card

A sample emergency card for infants with suspected fatty acid oxidation disorders to present to medical providers in an emergency setting documenting the need for intravenous glucose in time of stress or poor intake that put the infant at risk.



Page Updated: 1/9/2018