Sickle Cell Services
Sickle Cell Disease (SCD), a term to describe a group of inherited disorders of the red blood cell, is among the most prevalent genetic diseases in the United States (U.S.). While most common among blacks or African-Americans in the U.S., individuals with heritage from sub-Saharan Africa; Spanish-speaking regions in the Western Hemisphere (South America, the Caribbean and Central America); the Middle East; India; and Mediterranean countries such as Turkey, Greece and Italy; may also be affected. According to the Centers for Disease Control and Prevention, about one in every 365 African-American babies in the U.S. is born with SCD; and worldwide, approximately 300,000 babies are born with SCD each year.
The Ohio Department of Health (ODH) funds two grant initiatives under Sickle Cell Services Program related to sickle cell disease, sickle cell trait and other hemoglobinopathies: the Direct Service Initiative and the Statewide Family Support Initiative. As a public health program, ODH's Sickle Cell Services Program works to:
A. Ensure and enhance the availability and accessibility of quality, comprehensive sickle cell services and care for newborns, children and adults.
B. Promote patient/consumer/family/professional education to increase awareness and knowledge about sickle cell disease, sickle cell trait and other hemoglobinopthies.
C. Increase strategies to maximize collaboration, coordination and utilization of all sickle cell-related services/resources in Ohio.
At the state level, the ODH Sickle Cell Services Program also:
A. Provides grant funding to four hospital-based and three community-based Regional Sickle Cell Projects (RSCPs).
B. Maintains sickle cell standards and criteria that serve to outline service and administrative components for RSCPs under the Direct Service Initiative.
C. Monitors and evluates sickle cell services provided by the RSCPs.
The ODH Sickle Cell Services Program is part of the Genetics Section housed in the Children with Medical Handicaps Program (BCMH). In addition to the Sickle Cell Services Program, the section includes the Genetic Services Program, the Metabolic Formula Program, the Ohio Infant Hearing Program and Ohio Connections for Children with Special Needs (Ohio's Birth Defects Information System).
Ohio Department of Health
BCMH-Sickle Cell Services Program
Sickle Cell Services Program
246 North High Street
Columbus, Ohio 43215
Telephone: (614) 466-1549
Fax: (614) 728-3616
Last Updated: 08/13/2014